6 year old Katherine, the baby in our family, was diagnosed with Diffuse Intrinsic Pontine Glioma (DIPG) on June 2nd, 2015. After what seemed like months of trying to figure out why she was struggling to walk, talk, control one side of her face, and stay awake, we took her into the Hospital as a last resort, and were given the awful news. We were devastated. DIPG isn’t just a cancer diagnosis. What you would expect to happen, chemo, an effort to cure, is not part of our diagnosis. DIPG is terminal, and there are no survivors of this particular brain cancer. You are given your diagnosis, offered some radiation to give your child, possibly, some more days/weeks, and sent home. Any attempt at chemo is hopeless, and most families do not go this route, due to the needless strain it causes their children, with no results. You take them home, make them comfortable, and let them pass.
Katherine put on the fight of her life for 12 months, even serving lemonade to raise money for a cure, happily. Eager to spread the word about her cancer, and to let others know how she felt about her new life. Sadly, Katherine succumbed to her cancer on June 6th, 2016. She passed in my arms, surrounded by family and loved ones. We miss her so much.
Katherine passed away with no steroids, or pain killers, other than Morphine for her rapid breathing. She was able to avoid these drugs because she had been taking Cannabinoids since week 7 of her diagnosis. Cannabinoids were gradually introduced into her system until she was at a full 1,500 milligrams. She took 1,200 milligrams of CBD and 300 of THC daily. Not being on these other drugs is unheard of for a DIPG diagnosis, and many other cancers, and we are proud to say that even though they were expensive due to their special dispensation, we were able to find the money through fundraising, and with Canna kids help, get our daughter the dosage she needed daily to have a better quality of life. Thank you CannaKids for your efforts to keep Katherine comfortable and stronger then expected during her diagnosis with this awful disease.
Katherine deserved a chance, but her cancer, and many pediatric cancers, are not considered profitable, so they are brushed aside for other research. Even though Brain cancer is the #1 killer of kids with pediatric cancers. These children, and their families, are left to struggle, and hope for the best. The families of these children, including us, are their biggest advocates, fighting left and right to raise funds for research and pay for alternative medications such as Cannabinoids. Bake sales, clothing drives, lemonade stands, you name it, we do it. We are all we have. We are all they have… as the American Cancer Society (ACS) gives less than 1% to all pediatric cancers, and the National Cancer Institute (NCI) gives 3.8%. Of that 3.8% brain cancer gets 1%, and DIPG gets nothing!
Thank you for supporting CannaKids in their efforts to help children like our Katherine. She deserved more than 4, she deserved better access to healthy medicinal options as well.
Thank you, David and Jaime King (Katherine’s Parents)READ MORE
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